We Then Emailed Cyngor #Gwynedd Care Scrutiny Committee.

Mention has already been made of Vera Jones, Democratic Services Manager, at Cyngor Gwynedd, who was CC'd into the email sent by Medwyn Hughes, in response to our email, that raised  concerns over the mishandling of our Stage 2  'Independent' Investigation.

Mr Hughes also CC'd the following people into a further email to us -

James Gareth Huw (CG)
Jones Luned Fon
Eryl Jones-Williams

Now I am not really sure who the first two are but Eryl Jones Williams is the Chair of the Scrutiny Committee. The same committee that all councillors, bar one, were sent the below email on the 10th Sept 2018 - 

Dear Care Scrutiny Committee Members

We write in regard to the Autism Report which is to be presented to the care scrutiny committee and to bring to your attention to our own case involving our 'high functioning' autistic (******)

The Reports makes no mention of the challenges that those with 'high functioning' Autism and their families face in day to day living and that they may require exactly the same kind of support that Autistic people with additional learning disabilities need to enable them to live any kind of  full and independent life. The report focuses solely on those with a Learning Disability only, disregarding and abandoning those who are deemed 'higher functioning'.

 

Gwynedd council have for years now been talking about those people who 'fall between the cracks' in terms of support and that things were in the pipeline to help.

 

The Report(s) show that the council have not lived up their promises as their Report states that no support is to be given without there being a Learning disability. Do the council not recognise Autism as a lifelong disability ?

 

This Council seem to have little regard for the various 'acts' that are in place to ensure that appropriate and adequate assessment and support be provided for autistic individuals, regardless of their intellectual functioning, i.e the 2014 care act, 2010 Equality Act, NICE guidelines

 

We are one of those families with a 'high functioning' autistic child (soon to be adult) and part of our story is below. Every time an Independent person looks at Gwynedd council and their treatment of ASD and their families, they understand the issues and find against the council.

 

In this case, every time that there has been an Independent Investigation of the facts, it shows that the Department has failed, in many respects and has little understanding of the needs, or the assessment needs of such individuals.

 

A Senior Manager from the  Department has stated that there are no specifically autism trained social workers in this area, how then can any comprehensive assessment of an autistic person's needs be carried out in this area ?

 

We think that there are serious issues in relation to the lack of support, poor handling and inadequate assessment of autistic people and their families by this Department.

 

Briefly, this family raised a stage 2 complaint in 2010 with all points of complaint upheld but no recommendations acted upon.

 

Since 2014 we have had to endure bad and unprofessional behaviour from social workers and senior managers culminating in a stage 2 complaint raised on the 25th May, 2017.

The 'Independent' Investigation highlighted serious failings and upholding or 'not requiring to uphold'  all points of our complaint. This was presented to the council in October, 2017.

Gwynedd council refused to accept the findings and the case is currently being investigated by the Ombudsman for Wales.

 

This is on top of the recent Ombudsman's Investigation report of April, 2018 into the department that highlighted maladministration and service failure in this case dating from 2010 through to 2016.

 

Also in June 2018 a Report by a Gwynedd Council Information Manager also upheld the part of our complaint that related to a data breach - involving the release, to us,  of the names of two children receiving services from the council and Youth Justice team and the local school in Bangor they attend and also stated that redactions made to our personal information should not have been carried out.
The full Report can be found here - https://gwyneddsfailingcouncil.blogspot.com/2018/09/cyngor-gwynedd-councils-report-into.html

 

We wish to meet with and share these various reports with any members of the care scrutiny committee that share our concerns and that have any interest in challenging this department's failings in regards to our case and to question/challenge this Department's lack of understanding and proper assessment and support for autistic people in general.

 

We as parent carers of a 'high functioning' soon to be 18 year old young (******) have been recently told by social workers that there are no autism services in this area, or even vulnerable adult services. We have no place to go to ask for specialist support and advice needed as our (******) reaches into adulthood.....

 

This should be a matter for scrutiny.

                                                    *****************************

 

We had not one reply.

 

So we emailed the Scrutiny Committee once more...but that is for another post.

We Emailed Medwyn Hughes - Bangor Councillor.

In January of 2018 we sent an email to Richard Medwyn Hughes - 

Dear Richard,

My wife and I came across a copy of the report you authored in your capacity as Chair of the Audit and Governance committee dated 28 Sept, 2017. We also discovered that you are Vice-Chair of the Care Scrutiny Committee for Gwynedd Council.

I believe it is my families case that is mentioned in the report as being referred to the Ombudsman, the reason for this being the Council's refusal to escalate our complaint to Stage 2 of the complaints procedure.

We raised other issues related to but different from our earlier complaint and the Ombudsman advised us to raise this as a separate complaint with the Children and Family Department.

Due to the difficult history of the families case we raised an immediate stage 2 complaint with Customer Care, that was in May of last year, which has still not been concluded.

We believe the Council has behaved in an obstructive and delaying manner. There has been no proper communication or information forthcoming from the Council during the process and a staggering lack of transparency.

For your information we include a copy below of an email sent today to our MP, Liz Saville Roberts.

We note there is a Care Scrutiny Committee meeting later this month and ask if this meeting is open to the general public ?

Also, we would be happy to share and discuss our experiences with anyone from either the Audit and Governance Committee or the Care Scrutiny Committee to provide clarity on the situation regarding the Customer Care department and how the Complaints procedure has been implemented in our case.

For your information a stage 2 complaint was raised regarding the ongoing issues in this case in 2010 and all points of complaint upheld but recommendations never acted upon.

The Head of Children and Families has stated this report to be irrelevant to the current situation - we do not agree. Yet another example of the attitude that we have encountered for so many years.

The Department have repeatedly cited their disability criteria along with the Equality Act and even the Social Services Care Act 2014 as a means to refuse services rather than provide much needed support. This needs to change.

                                                ************************************

His response on the 10th of January 2018 was to CC the Democratic Services Manager, Corporate Support Department, Vera Jones into the email.

Dear ***********

I acknowledge receipt of your email dated 06/01/18.

I have asked the officers concerned about your issues.

The Audit and Governance committee of which I am Chair tend not to look at individual cases but at trends and practices involving circumstances like this.

The Care Scrutiny Committee meetings are streamed live and are open to the public where space is available.

However as you have raised this issue  with me I have sent your email on.

No doubt an officer will be in touch as soon as possible.

In the meantime you should also contact your local councillor along with including your postal address to me in a future email.

Regards,
R Medwyn Hughes